Woman Adopts Miracle Baby From Haiti With Rare Brain Disease

Sometimes all it takes to completely change your views and way of life is one new adventure. When 28-year-old Sarah Conque decided to leave grad school in 2013 to care for children in need of desperate help in Haiti, she knew it would be an incredible experience, but nothing could have prepared her for what would happen next.

According to LittleWarriorNika.com, a few months after Conque left her home in Louisiana to work at Danita’s Children Medical Center in Haiti she found herself holding a newborn baby with hydrocephalus, a condition where there is a buildup of cerebrospinal fluid in the brain. Conque wrote she vowed to help the woman and the 3-month-old baby she claimed to be her niece, traveling far to help little Nika undergo life-saving surgery.

I hope y'all haven't forgotten about this babe that went to Port Au Prince in March for neurosurgery. The operation went wonderfully! Surprisingly, the biggest difficulty has been encouraging her "aunt" to love and take care of her. It's moments like these that my heart breaks in a million pieces, but it's also when there is so much room for The Lord to work. It's been a process, but her "aunt" has been coming to therapy and Baby Rescue Program for the past 3wks consistently! This is HUGE! Little victories, step by step, will eventually make the bigger difference! All the glory to the one that made this princess! #hydrocephalus #haiti #recreationtherapy #danitaschildren #babyrescue #love #littlewarriornika #hydranencephaly

A photo posted by Nika (@littlewarriornika) on Jun 6, 2014 at 6:42am PDT

Unfortunately, Conque soon uncovered a web of lies from the woman, Nika’s mother, who was a prostitute that tried to drink poison to kill her baby and even sell her body for research. She explained that women being ashamed of disabled children is common in Haiti. “Many believe that if you have a disability, you must be cursed or that you can be healed with voodoo rituals, or even a worse belief – that you can catch “it” too if you touch the individual.”

Over the next few months, Conque gave Nika’s mother a second chance to get her baby help from the medical center, but when Nika’s health continued to decline from malnutrition and not her condition, Conque knew she needed to help. “I had a feeling deep in my heart, which could have only come from the Holy Spirit, that we had no time to waste to act on Nika’s behalf,” she wrote, before finding the 6-month-old home alone in a pile of trash, weighing just 6 lbs.

In September 2014 (left), Nika was 12 mths old and weighed only 6lbs. Her little body was fighting, but her organs were failing. She couldn't suck a bottle and could only tolerate a pinky sized amount of milk every 2hrs through a feeding tube. On top of the neglect she endured prior to living at @danitaschildren, she was given the diagnosis of hydranencephaly that medically gave her terrible odds of living past even 12mths. You see, she only has a brain stem and a little bit of her cerebellum. Her CT scan showed that she doesn't have hardly any brain tissue! How does this all add up to equal the beautiful 16lb 16mth princess (right) that lights up our lives today?! The only explanation is that it is a COMPLETE miracle! The Giver of Life reversed the outcome that many thought was inevitable… He gave her body new strength and continues to do so everyday! I share this today not to tug on your heart strings, but to continually give God the glory and praise for His divine love in our lives! Praise God for Nika and her beautiful soul and thank you Jesus for the privilege of being in her life ❤️ ————————————————- "There are only two ways to live your life. One is as though nothing is a miracle. The other is as though everything is a miracle." — Albert Einstein #hydranencephaly #miracles #gratitude #haiti #medicalmissions #orphancare #recreationtherapy #ayiticheri #littlewarriornika

A photo posted by Nika (@littlewarriornika) on Feb 4, 2015 at 7:58am PST

Although Nika’s mother wore nice clothes and jewelry, it was clear the baby was never fed and would soon die. She agreed to give up her baby, with Conque looking after her. Doctors told Conque “99% of babies with this diagnosis die before they turn one and that this condition is ‘incompatible with life’,” but the miracle girl kept surviving and she was able to find a hospital in Florida that did pro-bono surgery.

After a long and grueling process, Nika now lives in the United States, under a medical visa, with her permanent guardian, Sarah Conque. Follow their amazing journey together on Instagram and click here to help donate for Nika’s medical funds.

This girl keeps showing us miracle after miracle…. "Don't believe me? Just watch!" Just a little snippet from her physical therapy session today… If you would have told me even a few months ago that she would be standing up with assistance and holding her head up, I would have thought it was just a dream! Well, I guess dreams really do come true, although she does have support, keeping her head from falling forward or from side to side is all her (well, and a whole lot of GOD) <3 *Kidzbop version of Uptown Funk @brunomars 😉 #littlewarriornika #hydranencephaly #hydrowarrior #neuroninja #hydrocephalus #miracle #brunomars #gottakissmyselfimsopretty

A video posted by Nika (@littlewarriornika) on Apr 5, 2016 at 8:17pm PDT

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[Featured Image: LittleWarriorNika.com]

 

Woman Adopts Miracle Baby From Haiti With Rare Brain Disease is an article from: LifeDaily